Update 7/9/13

Yes, we were finally admitted. Obviously mixed feelings about this. Glad we are starting this because the sooner we start the sooner we’re done. He has had a pretty low-key day. Nothing too much happening. He got to see his room today and he was super excited. His room has been decked out in Spongebob stuff. Mike, Ashley, Sharon and Tim sent a box with decorations for his room and Tom and I purchased some bedding for his bed and he also got a spongebob piggybank. The staff also commented on how much they like it- hopefully it will be a bit of a bright spot for him because this transplant will not be easy. Today in the van he asked me if they were taking his nose tube out today and I said no. He knows that there is a good chance that they will pull it when his mucositis gets bad because it will bother things. He expressed that he doesn’t want to get it out because he’s afraid that when they put it back in again he won’t be able to talk. (The first time it really bothered his throat and he couldn’t talk for days other than a word or two.) He also is afraid of his throat hurting a lot and other things, which he knows from us talking to him about what to expect. So I pray that this round is a bit easier for him than they expect but we’ll see. I wish more now than ever that I could do this for him, because as we start chemo tomorrow I’m just so sad that he has to go through this kind of pain. However, on the positive, this is his last chemo. So like I told him today, after this he can start to regrow his hair again which he’ll like.
So today they didn’t start him on chemo, but he did start a medication to prevent seizures which is one of the side-effects of one of his chemo’s. In addition to the vitamins and Zantac (acid reflux) he already takes, tonight they added another acid reflux to counteract the side effects of chemo, an anti-viral, a medication to help prevent VOD (veno-occlusive disease) which is a condition in which some of the small veins in the liver are obstructed and Bactrim. He has had Bactrim every Sat. and Sun. since we started chemo to protect him from pnemonia, but they are upping the dose in prep for when he gets his stem cells back, because apparently Bactrim slows down cell growth which they don’t want once he gets his cells back. Anyway, it just seems like a lot of stuff and is another reminder of how much they are trying to protect him going into this.
There have been some questions as to transplant and why it is needed since they said that he has had “full response” to his chemo before this. This is because a bone marrow transplant is wiping out the current bone marrow and replacing it with “new” bone marrow. Just like if a person had an organ transplanted, they would take out the old organ and put in a new one, the bone marrow transplant is similar. The only difference is that they don’t put bone marrow back in, they put in stem cells so that the bone marrow regrows on it’s own. The high dose chemo is to wipe out the cancer cells from the old bone marrow and regrow healthy marrow. Hopefully that makes sense and if you still want to know more here is a link explaining it more from Children’s. Bone Marrow Transplantation. I will say that we are incredibly fortunate to be at this hospital with the doctor we have because this hospital was one of the pioneers of bone marrow transplants and they have performed over 1000 of them. This doctor specifically has had patients come from all around the world to have him so God has obviously blessed us with putting us here right now and giving us this doctor.
So that is the update for today- I ask, beg, and plead for your prayers for Collin as we head into transplant. I cannot convey to you how serious transplant is and how much he needs your prayers. Thanks so much for the prayers that have already been said and for those that will be said. I know my prayer list is mostly the same lately but that is because what is listed is so necessary and important.

Thankful for….
* A peaceful day and getting admitted so that we can get this done. Obviously God’s timing is important and He had him wait for this to start and He’s having him start now for a reason too.
* Seeing Collin smile when he got to see his room and getting to see him talk to the nurses and doctors today. He even got a picture with Ali! 🙂
* Those who are praying and continue to pray to a God who is in control and who “goes before us” and has the power to overcome what we cannot- his cancer and all that surrounds it.

Please pray…
* For Collin’s mental and physical well-being as we head into transplant. That he may know the strength of God and be given help through this process.
* That Coop and Luke will know that they are loved infinitely even though we cannot always be there with them.
* That the Lord would put a divine shield around Collin- that he would not have any complications or infections that would make him seriously ill or kill him.
* Please pray that Coop and Luke’s caregivers can have patience, love them hugely during this time and that they will have renewed strength and stamina during this time as we are SO thankful for them.
* That Collin’s pain would be manageable during transplant and that if it is too much for him, that he would be able to rest a lot so that he would not have to be in so much pain.

* That Collin’s counts would recover quickly and that the chemo would not damage anything that is healthy but would ensure that the cancer never returns.
* That Collin would do alright with his new hearing aids and would not feel too self conscious about them- and that maybe he would even miraculously recover the hearing he has already lost.
* That no matter what happens in this process that Collin would not be scared and would continue to know and be comforted by the presence of God.
* That our entire family will feel the nearness of God in our lives and that His power will be proved to us and to all around.
* That after treatment is done that the cancer would be entirely gone from his body and that it would never return.
* That because of this trial in our lives, that there will be no one that will be able to doubt the absolute power of God in all of this. “For with God nothing shall be impossible.” Luke 1:37
* That this trial will help us and others learn lessons that will positively impact our lives forever.
* For all of the children who have been previously named in our prayer requests and specifically for Sam at this time who’s now starting another new treatment to try and put his Leukemia into remission so that he can have a bone marrow transplant. He was in remission once and now they can’t seem to get rid of it.

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Comments

Update 7/9/13 — 2 Comments

  1. Continuing to pray for you all even as we travel. The Lord both hears and answers prayer from every part of the world.. your ‘replies’ make that very clear. Love your room Collin! You will be so busy looking at all the wall hangings and keeping these new nurses in order, time will go by fast!!! Tim and Amanda and all the loved ones….Keep strong in the Lord. He never fails. Our continued support and love.